I attended my fourth support group meet-up yesterday. It’s interesting to see and hear people from different parts of the globe, who though somewhat varied from person to person, all have the same tried-failed-try again experiences with HS. The group setting encourages sharing products, meds, etc that have helped each person individually. I’ve appreciated hearing about things that I’ll try/look into, as well as sharing what has helped me.

More people than not, I’ve learned, hide this illness or lie about it, even with family and friends. It’s not clear cut and neat, so it’s harder for people to accept it about themselves, let alone be honest or open with others. I understand this fully, but the secrecy and withdrawal can only compound the depression that already comes with having HS. I actually believe this to be true of most personal struggles in life. Everything isn’t to be shared with everyone, but suppressing, hiding or pretending, aren’t sustainable ways of living….for anyone. I’d be in a lot worse shape if I chose to do that…..if here at all.

I do hope to encourage others not to be ashamed because of this hand life has dealt them. At the same time, I’ll strive to remember that I have HS, I’m not HS…..I have HS, but it doesn’t have me!

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