My day started with my showering, ointment/bandaging routine. Sometimes after showering, while in the process of bandaging, a burning sensation will set in my buttocks. I try to quiet it with my draw out salve and boil ease ointments. Sometimes it helps and sometimes it doesn’t. It eventually worked today. I got out of bed to complete the bandaging for the upper portion of my body and searched for something presentable to wear in my ministry. I made plans to work in person door to door service with my sister Leah🥰

In the midst of dressing, I thought it wise to take a Tylenol to hold me over until I was able to eat and get some prescription Motrin in my body for the typical soreness. Hadn’t gone anywhere yet but was pretty much already exhausted.😴

Dressed, breakfast and meds, now I just had to wait for my dear sister to pick me up. She did so, and having the opportunity to be out in the ministry, and as a plus working with her, made the aforementioned all worthwhile 🥰😘👋🏽🙏🏽 I was very happy to have put forth the effort, and appreciative that she made it possible.

I came home, ate and sat up for quite a while in my living room. Gauze, burn and foam pads plus pillows didn’t prevent the biting pain in my buttocks once I stood up😖 I’m now in my bed and the pain has abated. Even with the ever present difficulties of HS, I’m still grateful for this day, of which being with one of my beautiful sisters was the highlight ❤️