Plans to travel, joy of shopping and getting dressed, are among the things that gradually decreased for me over the past almost 16yrs.

Waking up, moving about, attempting to sleep etc, all in discomfort and disgust greatly impacted my sense of femininity, fashion, feeling clean, motivation and overall connection to the me I was once used to. I came out of the pandemic feeling that life outside my house, outside of my room, would be very limited. As a result, I not only gave away clothing items that were no longer comfortable due to HS, but I purged my overall closet as I felt a diminished use of a wardrobe. This was a stark contrast for a girl that loved clothes/shoe/makeup and hair shopping.

HS is a horrid disease. Life became a game of adapting and survival. Feeling cute, desiring fashion, being girly.. These things were replaced with managing leakage, bandages, bed underpads, pain pills, antibiotics, ointments and unpleasant odors. IT’S BEEN A LOT!

This year however, brought me to a welcome change. I began a weekly regimen of humira in March. Since then, my discomfort and drainage has decreased, I’m able to have reasonable comfort without pain meds, use less bandages, and as a result I can derive more joy out of life.

Now that I’m going out more, the feeling of wanting to get dressed, put outfits together and do my makeup is beginning to return. This gives me joy.

Life in this passing ugly world will always require more effort for me to do the little things, but that doesn’t mean that I can’t make the best of what I have now, and that’s what I plan to do.🥰

Evolution to a lighter spirit. Can you see the difference from three years ago and now?⬇️