Hidradenitis Suppurativa

It’s important in life to remember and count your blessings. Among the blessings in my life, is my nephew, James Devon Rivera. A young man of integrity, loyalty and great character!

It brought me great joy to see him graduate college this past Thursday. Anybody can obtain a piece of paper, but the sense of pride is born out of an individual who wants to be the best person they can be, and desires to do for and help others. That’s the person I know my nephew to be!

Love you to the moon and back little boy♡

 

Howdy folks….

Almost halfway through this week. Feeling tired, but who isn’t I suppose. I was able to make a dermatologist appointment for the 22nd of this month. In addition to some dry patches that have been showing up on my left leg, there’s a large area of dry and sensitive skin on my left ribcage. I attribute it to years of having hot water run on my left armpit since it’s always been the worse one. It’s rough and burns, particularly after I shower. I’ve been using vaseline and cocoa butter lotion, but I know that it’s time to seek medical attention. I look forward to hopefully getting some help.

So that’s that. I’m going to take a sick day Friday and rest. That I look forward to.

Hope you all are well……ttys

 

 

Hi loyal readers!

I haven’t checked in in a while. I’m doing alright. My sisters and I went to Puerto Rico for a few days. It was great being with them. No matter where we may have gone,  I know it would have been a good time.

I so appreciate the way they look out for me, as well as how we look out for each other. From making my bed, preparing my bandages, offering to help me dress and going to get breakfast, my sisters are special ladies!

Do we always agree or get along? Of course not. But we love each other and I wouldn’t trade them for ANYTHING!

I love you Leah and Lori! You’re the best!

Good evening readers!

Coming off an extended weekend. I had off for Good Friday, and I had today as well. Yes, I’m thankful for those four days, however, my mind and body are in need of another day! I feel the thought of preparing for and going to work causing anxiety. That indicates to me that I need to take the extra day!

June marks 17yrs with the city/my office. I’ve earned my time wouldn’t you say?😉

I’ll pray and concentrate on preparing my self for Wednesday tomorrow. That’ll help it not to be such a drudgery

Hi all

Few days since I’ve checked in. Over the past week, a few people have expressed that they’ve found my blog encouraging. It’s encouraging to me that by sharing my experience, I can uplift someone else.

Thank you for allowing me to share♡

Good morning. Took pic while waiting for some lab work to be done. Not a great morning. Though it doesn’t look it, skin on left ribcage feels very raw🙁. Perhaps from hot water used to heal cyst, or just stripped from antibacterial soap…I don’t know. Applied some cortisone ointment and Vaseline to soothe it. That didn’t work, but the two Advil I took are beginning to kick in.

Yes, I’m tired. I don’t say that without realizing that most people are, as a result of just coping with life. But I’m just expressing how I feel…TIRED!

I know all about the possibility of things being worse, I know it’ll someday be better, I know I find a way to manage each day and on and on and on….But right now, at this moment…I’m just tired

Hello all

I’m happy and relieved to report that the wound in my right arm is closing. That’s a big relief! It’s easier to remove my bandage from that spot and it no longer burns when the air hits it.

You know, on more than one occasion, I’ve had doctors commend me on keeping the sites clean. One even tried to offer “comforting reassurance ” that I didn’t have this disease due to any lack of good hygiene…..lol. Yeah, I pretty much know that I’m not dirty doc, thanks…Ha! But that said, I am in fact very thankful to Jehovah, that he’s helped me care for myself in such a way to avoid complications of infection. Honestly. I am susceptible to a lot with my flesh constantly being open, but he’s helped me keep it free of outside infection and I’m grateful!

You really have to be appreciative of life’s blessings. No matter how difficult life gets, and it does get difficult, there’s always something to be thankful for ♡

Good Sunday evening all!

The weekend has ended and its back to work tomorrow 😔. With the snow day Tuesday and other vacation days, it’ll be my first day back since Monday. Uugh. There’s a Monday dread lurking overhead. However, it has been a great weekend. I’m mentally exercising my brain to focus on the blessing of a pleasant few days off and enjoyable weekend. The expression is “don’t cry because it’s over, smile because it happened “….or something like that. .lol.

I am in fact smiling in my heart because of my awesome family. We have our problems and issues as every family does, but we also have a lot of love, laughter and fun! It’s genuine and real. I’m thankful for them and will concentrate on showing it more. A simple evening at home with them after a morning of worshipping and dining with my sisters, proved to be so satisfying!  I wouldn’t trade these people for anything!

So, yes, back to work. But I’m going to go, thanking Jehovah for all his blessings, one of which is a wonderful group of people that I love and that love me!

Have a good night all, and a stress free Monday…..remember the important things ♡

 

“There is more happiness in giving than there is in receiving”

These words always prove true! I had the privilege to honor these two young men, my nephew on the left and former coworker on the right this evening. I wanted to express my feelings of pride in the way they comport themselves as young men, in particular as young black men! Living, breathing examples of what intelligence, dignity and determination looks like! Media would have you believe they don’t exist, but indeed they do!!

It makes my heart happy to see them realize how they’re valued!

Truly a blessing and some of the best medicine there is, to think of and do for others!

 

Good Friday evening!

I hope you stayed warm and dry today. There were flurries and a drastic drop to the 30’s. We were in the 60’s yesterday! Sooooo strange.

Fortunately, I was home. I decided yesterday evening to use a sick day. I ordered a tube top bra. I thought it may serve my purposes, since I’ve worn some tube tops without problem.(In hindsight however, I cut some of them in such a way that they wouldn’t press the very sensitive skin on the bra line)..I haven’t worn a real bra in years since HS, primarily because I’m not much into self-inflicted torture! LOL. I dress in such a way to remain modest without the pain…..gotta be creative!

Back to the story… I wore this new tube top bra to work yesterday and somewhere around the two o’clock hour, I realized that there was noticeable pain, primarily on the left side on the bra line. I made a bit of an adjustment, attempting to pull it below that area, but my 4:30 walk to the train was quite memorable, and soooooooo reminiscent of the days prior to me coming to the realization that I could no longer wear bras. WHEW!

Compacting that, I began to feel foggy in my head and a bit sick. I attributed this to my body reacting to the pain. After getting to my car, I pushed through to go to the store so that I could make the cheesesteak I was craving. When I parked on my street, I sat in my car for about five or six minutes, as I felt too tired to move. It wasn’t until being hit with a headache, that I realized my sinuses were the cause of the sick feeling. I was able to remedy this with some sinus meds.

By this time, I tapped into some common sense, and decided to stay in today. As for the tube top bra, I’ll do some alterations and try it when I’m just in the house. ….Trial and error my friends.