I’ve been away from posting my day-to-day HS experience for three years now. I was largely sidetracked by my venture and efforts to retire, and subsequently be approved for SSD.
I’m thankful for the outcome of both endeavors, now being three years into retirement. Though I didn’t choose this eventuality, and would much rather be healthy and grumbling about my 9-5😃, I accept it as a blessing! I honestly look back in almost disbelief that I was able to push through and work with HS plaguing me. There’s no doubt that Jehovah gave me what I needed to endure.
As for my condition, it persist. Flares still come, pain and discomfort remain loyal companions and the mental fatigue of this life altering disease still take their toll. Despite this however, I do manage to hold onto joy and hope! My faith, friends, family and therapy are all strengthening aids in helping me not to give up and give out!
I’m now 39yrs old and in my 13th year of suffering with HS. Thirteen years as an ‘Altered Version of a Me that I Never Knew.’ Physical scars, wounds – some open and active, some closed and other HS site mutations have lent themselves to a challenging mental and emotional journey… But I’m still here….. Sometimes down but not defeated,…. My fight continues 💪🏽
Hidradenitis Suppurativa 
Awesome post! 🙌🏾🧡
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My sister, living with and seeing all you go through on a daily is not easy to watch with this awful disease! Somehow though, seeing your determination to do what’s necessary and beyond for yourself and others, despite limitations, gives me great strength! You don’t complain, you do all you can to keep pushing spiritually, physically and mentally -truly commendable!
Just a little while longer and you won’t have to worry about which food or ingredients caused flare (s), all foods will contain only what’s good for you! Imagine no longer needing to cut clothing, pillows etc. in order to make you comfortable and so you can look presentable?
Promises found in Isaiah 33:24, Revelation 21:3-4, Titus 1:2 are a few reasons why you can continue to endure just for a very short while longer.
Love ya!
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Thank you so much for your words of encouragement…but so much more than that, for being such a major contributor of joy to my life!!!
You’ve so often turned some of my darkest days and times into moments of laughter, calm and hope. I love you beyond what any words can ever express.
Thank you for being my blessing!!!!
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