“If you awakened tomorrow, with only the things you thanked God for today, what would you have?”
I heard this question posed a few years ago at a religious convention. For me, it drives home the point that though life has many challenges, I should never fail to reflect on and more importantly, thank Jehovah for all the good he does and has done for me on a daily basis!
One thing I thank him for, is the encouraging support, acknowledgement and feedback of those of you I chose to share this part of my life with.🥰❤️🥰 I’m not AT ALL a social media person, but this is more about having a way to show my full self, especially with those that matter to me. So, again, I thank you and I thank Jehovah FOR YOU❣️
Hidradenitis Suppurativa 
Hi Loni, your blog is absolutely amazing. I know I’ve mentioned this previously but I’ve suffered from this horrific disease from age 12 until present day. I was diagnosed at 26 and it has been a battle for over 30 years. I can remember having fevers so high that I almost passed out. I can remember the pain being so extreme that I couldn’t move. I can remember the tunneling with the smell being so bad that I was afraid to even go out of the house. As a teenager I was bullied constantly because of the odor and the mess it would leave on my clothes when a flare would burst. As an adult I would have such an awful smell that people would talk about me…I was even turned in to the supervisor at a job I was working at because my coworkers said I had bad personal hygiene. My self esteem and self worth was so low. I tried so many different topicals and antibiotics that the doctors and derms would prescribed but nothing really helped. I am now on Humira and praise God this is the only medication that has been keeping the flares under control. My triggers are stress, bra’s, and clothing. My flares are mainly in my arm pits but I do get a couple in the groin area. I hate this disease I am constantly praying for a cure. It is so good to have a great support group because for years I thought I was the only one suffering from this. Your images that you posted I can definitely relate to. Thank you so much for this blog because it really helps us all. We are all in this together.
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Hi Franchone! I thank you so much for reaching out. I’m so sorry for your suffering! There’s truly no way of summing this experience up in words. Having your life hijacked at such a young age is devastating! We know that outsiders are unaware of our circumstances, but the blatant unkindness is inexcusable! I’m glad that you’ve found a measure of relief with the Humira, and yes, knowing that others can relate is invaluable! I’m thankful that I can share my story and let others know that somebody understands 🤗… Keep pushing through Franchone… You’re not alone! 💪🏽💪🏽
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Good morning Franchone! Sending wishes that you have a comfortable, peaceful and stress free week☀️
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