HS makes no room, at least not the way I have it, for living a normal life I do my best to stay engaged with loved ones, remain active spiritually and be some resemblance of who I once was, but physical challenges I face every day makes this beyond challenging.

If I could change anything about this, number one would definitely be the burning, itch, leaking and pain in my buttocks. But a close second to that is the constant draining from the old wound on my stomach. The smell of the secretions vary from the smell of an unsanitary behind, to the smell of a dirty fish tank x 5. What person, woman especially wants to experience that?!

I especially smell this after removing my bandaging at the end of a day. I’m presently using tea tree oil to help with the odor. I don’t want others to smell it.

I’m fighting and have been for a number of years with this. Prayer and therapy are two tools I use. The loss of interest in most things is an unfortunate byproduct. It’s hard to focus when you have so much going on physically 😕..but I fight to be in the moment and not give all my joy to this challenging circumstance.

I’m in bed and draining from my stomach and upper abdomen as I typically do…. And here comes the smelly blood…. This ain’t the real life